How to self-advocate

by | Apr 22, 2024 | News

During Teenage Cancer Awareness Month, we asked you what you’d like us to cover on our blog and Instagram channels. Here, we tackle one of those questions:

“How to self advocate while dealing with doctors who don’t understand the lifelong impact of Rb”.

What a brilliant question! Two of our leaflets particularly are perfect for this:

These can be downloaded from the CHECT website, or we can send hard copies to you if that is helpful. In terms of other info on the website, there is the Genetics page, as well as information on late effects which might be helpful to share with the GP and other healthcare professionals.

The CCLG also have some useful publications for teens and young adults, in particular Living Beyond Cancer.

Remember, if you have any questions, our support team are on hand to help or point you in the right direction. You can contact us by emailing us at support@chect.org.uk or phone: 020 7377 5578.

Related Stories
TYA in-person event!

TYA in-person event!

Come join us and other teens and young adults affected by retinoblastoma (Rb) at Ackers Adventure in Birmingham. Ackers Adventure is a charity that exists to promote and engage people of all ages, abilities and disabilities in the regular pursuit of outdoor adventure...

What do you wish your friends knew about your eye?

What do you wish your friends knew about your eye?

https://youtu.be/UgMeGqOyEYs At the recent podcasting day, we asked some teens and young adults what they wished their friends knew about their eye(s) and when they tell them they had retinoblastoma. Remember, our support team are available if you'd like to chat:...