fbpx

My story

Kelsey is wearing a cowgirl hat and purple dress
An interview with Kelsey Ellison

An interview with Kelsey Ellison

Kelsey Ellison, otherwise known as Norma Night, who had Rb growing up, tells CHECT about her life post-Rb, her new career and living with a prosthetic eye. Can you tell us about how you were diagnosed with retinoblastoma? I was two years old when my parents noticed...

The image shows Katie, Danni and Samih and the text reads 'how we talk about Rb, our eyes and vision
How we talk about our Rb

How we talk about our Rb

We spoke to teens and young adults who have had Rb about how they broach conversations about either their prosthetic eye or lack of vision: Danni said, "I tend to vary my response depending on the age and understanding of who is asking, I volunteer as a Scout...

Text reads 'Katie on Tour' and has a picture of Katie smiling
Katie on Tour: My musical experiences after retinoblastoma

Katie on Tour: My musical experiences after retinoblastoma

Hi, I’m Katie and over the summer I went on a tour with the Hampshire County Youth Orchestra to France and Spain, in which I am principle second violin. I also had retinoblastoma when I was 8 and now have an artificial right eye. In orchestra this means I always sit on the right hands side of the stand (we share in pairs) and sometimes I need to move around slightly more than average to make sure I can see the conductor. This is a daily blog about what we got up to and my life on tour (with an artificial eye!).